We are delighted to bring you short interviews with some of the individuals behind the HAEi and hae day :-).
Hear their thoughts on the first ever awareness day for HAE and their hopes for what could be achieved in the future. Two of our interviewees also tell us how their national member organizations work to support patients.
Henrik Boysen, HAEi Executive Director, talks about the inspiration behind hae day :-), hopes for the first hae day :-) and hae day :-) in the fut read more
Michal Rutkowski, HAEi Vice President and Chairman of the Polish National Member Organization, talks about connecting people with HAE in Poland and the momentum of hae day :-). read more
Janet Long, HAEA Executive Vice President, talks about the HAE landscape in the US, the Congressional Resolution that recognized May 16 as hae day :-), and putting HAE on the polit read more