Since the launch of haeday.org in January 2012, 138 visitors have completed the first ’30 second survey’. Low awareness of HAE was selected as the greatest challenge for people with Hereditary Angioedema (HAE) by over half the respondents. Positively, 72 per cent of those who took the survey indicated contact with a local HAE patient organization. We hope that hae day :-) will be the catalyst to spread the word about HAE and the support available to help make a real difference.
One of the aims of hae day :-) is to make it possible for people to donate to the national member organizations that work every day with HAE patients. In addition, a new set of resources to help members make the most of hae day :-) is now available. The guide aims to assist with campaigns and local awareness activity. Everyone can also send a smile or share details of planned events through haeday.org.
Full results from the first ’30 second survey’ are provided below. Three new questions are now live and can be answered through the site’s homepage.
Do you have HAE?
How much do you know about what causes HAE?
What would you say is the greatest challenge for people with HAE?
Have you ever had any contact with your local HAE patient organization?